Listening to Celine Dion share her struggles with stiff person syndrome, a rare and debilitating condition, brought a wave of reflection over me. Her story of enduring immense pain and yet fighting to make a comeback resonated deeply with my own journey. It reminded me of the challenges I’ve faced and the resilience I’ve mustered over the years
For a long time I battled in silence. Diagnosed with Ehlers-Danlos Syndrome (EDS) dysautonomia and mast cell activation disorder I kept much of my suffering to myself. The constant pain the days when I could barely get out of bed and the cognitive decline that left me struggling to think and speak clearly—these were my daily realities that I only shared with close friends and family
The journey to understanding my health issues has been long and arduous. About 15 years ago I started noticing symptoms that would progressively worsen over time. It wasn’t until July of 2023 when my condition deteriorated to the point where I could barely walk that I began to truly understand what was happening to my body
In my quest for answers I delved into extensive research and found a surprising connection: breast implant illness (BII). It was a revelation that led me to a pivotal decision—to have my breast implants surgically removed. On April 19 2024 I underwent a significant reconstructive surgery and to my immense relief I began seeing a resolution of symptoms almost immediately
The surgery was a turning point. The extensive reconstructive work was daunting but it was necessary for my healing. Now eight weeks post-surgery I feel like a new person. The long list of symptoms that once plagued me is diminishing. It’s a transformation that has given me hope and renewed strength
Reflecting on the past I can see how my health struggles affected my work and daily life. There were times when I couldn’t function properly my cognitive abilities were impaired and simple tasks became monumental challenges. I was in denial because I needed to maintain my livelihood and continue working. But being out of work since October 2023 allowed me the time to heal to have the surgery and to work with a naturopathic doctor on a slow careful detoxification process
Listening to Celine Dion’s story I realize the importance of sharing our struggles and triumphs. Her courage in the face of adversity inspires me to open up about my journey. I want to tell those I worked with and for about the battles I fought silently the moments when I was off my game and the immense effort it took to keep going
I still have a long way to go on my healing journey but I am hopeful and determined. Sharing my story is a step toward that healing and I hope it resonates with others who might be facing their own silent battles. Together we can find strength in our resilience and courage in our vulnerability
Thank you for taking the time to read my story. Here’s to healing hope and the unyielding spirit that keeps us moving forward.
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